#orphandisease
Live, measured metrics for the hashtag #orphandisease from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #orphandisease
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · mastodon.social (Mastodon public tags API) · fetched 2026-11-06 01:41 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · mastodon.social (Mastodon public search API) · fetched 2026-11-06 01:41 UTCLive pulse
measured · mastodon.social (Mastodon tag timeline) · fetched 2026-11-06 01:41 UTCEverything below is measured over the latest 8 public posts (spanning ~72273 hours).
Posting hours (UTC)
Languages: English (5) · German (3)
Avg boosts / post: 0.5
Top of the latest posts
Natural History and Post-transplant Outcomes Among Patients with Kidney #LECT2 #amyloidosis. This is our internal data about kidney function before diagnosis and after transplant in those #ALECT2 #orphandisease #kidneydisease https://www.me
Natural History and Post-transplant Outcomes Among Patients with Kidney #LECT2 #amyloidosis. This is our internal data about kidney function before diagnosis and after transplant in those #ALECT2 #orphandisease #kidneydisease www.medrxiv.or
Christos Argyropoulos MD, PhD, FASN 🇺🇸 0kale/acc@[email protected]♥ 0↻ 02026-08-03 20:52 UTCView post →There’s a reasonable chance that I’ll never see mom again; she doesn’t want bedside visits and the sitting up days are growing too entirely rare Can’t treat the orphan disease while she’s on chemo; can’t drop the chemo if she wants to breat
#orphandisease across platforms
every network with a public tag surfaceFollow #orphandisease straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/orphandisease